Developing Clinical Trials that Account for the Realities of Patient Life

Juhi Kunde, Director of Science and Research Marketing

Read time: 2 minutes.

We are pleased to continue our three-part series about how patients and researchers can work together to develop clinical trials.

In this second video, LUNGevity again partnered with Rising Tide for Clinical Cancer Research to show how researchers and patient advocates can be empowered with tools to create clinical trials that resonate with patients and address the key issues they care about.

If you missed the first video, How Can Patients and Researchers Design Clinical Trials Together, you can watch it here.

Watch Part 2 below, or use the timestamps to skip to a specific section.

Introductions: 0:00 – 3:22

Meet moderator Karolina Werynska, PhD, scientific program manager for Rising Tide Foundation for Clinical Cancer Research, as she introduces the panelists.

Janet Freeman-Daily, patient research advocate and co-founder of ROS1ders
D. Ross Camidge, MD, PhD, professor of medicine-medical oncology at the University of Colorado

Laying the Groundwork for Patient Involvement: 3:22 – 14:29

Panelists explain what interventional clinical trials are—studies of the safety and effectiveness of a treatment—and how patients can get involved in providing guidance and feedback. The panelists also offer examples of why the patient perspective is so important.

Helping Researchers Find Patient Partners: 14:30 – 23:48

In an open discussion, panelists offer suggestions for how researchers can find patients interested in getting involved in research. They provide real-world examples of researchers who have adjusted their clinical trial protocols based on patient feedback. In addition, they offer a deeper understanding of how much patient input is realistically possible to incorporate in clinical trial design.

Addressing FAQs for Researchers 23:49 – 31:15

Panelists discuss the timeline and planning needed to optimally involve patients in clinical trial design. They underscore the need for more patients to get involved in developing clinical trials and offer an example of a great community-wide effort in lung cancer to engage patients.

Wrap-up Discussion and Key Takeaways 31:16 – 41:10

Here the panelists discuss the importance of using patient-centric endpoints in clinical trials. They also offer resources for researchers and patients interested in learning more about collaborating on clinical trial design.

Click here to search for clinical trials and see which ones you're eligible to join. Part 3 of this series, Real-World Examples of Patient Involvement in Designing Clinical Trials, will be released on January 28.